How Breast Cancer Saved My Life: CDH1 – The gene nobody's heard of

From Breast Cancer to CDH1 to a Prophylactic Total Gastrectomy to Living Life Without a Stomach

Sunday, February 14, 2021

Let's Talk Dessert

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 Let’s talk dessert. Valentine’s Day seems like a good day to do that.   Leading up to my gastrectomy there were so many uncertainties. No...
Wednesday, August 12, 2020

CDH1 and COVID-19

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2020 has been a year of graduations, not the high school and college graduation ceremonies that have been canceled, postponed, or made virtu...
Friday, February 21, 2020

3rd Anniversary

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Happy 3rd Total Gastrectomy Anniversary to me! It was 3 years ago that I had my stomach removed and my life was forever changed....but not...
Sunday, January 5, 2020

Goodbye Houston

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We flew down to Houston on New Year's night for my follow-up with Dr. Mansfield at MD Anderson on January 2.  It was surreal walking int...
Sunday, August 18, 2019

Traveling without a Stomach

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Many people ask how difficult it is to travel without a stomach.   It does take more planning than before, but is easily doable.   When fl...
Friday, July 19, 2019

Lenexa UMC 150th Anniversary

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Sunday, June 30, Lenexa United Methodist Church celebrated their 150 th Anniversary, being founded in 1869.   This has been my church sin...
Thursday, February 21, 2019

Two Year Anniversary

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Two years ago today is when I had my stomach removed.  The past year has been a good year.  I'm in a good place. Here's some hig...
Sunday, July 22, 2018

Daily Food Routine

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As I get further and further removed from my gastrectomy, I find myself posting less and less often.  I often think about posting, but don&#...
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Sunday, April 8, 2018

Drinks, Sweets and Dumping

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Dumping syndrome is a condition some people experience after a total (or partial) gastrectomy.  It is caused when food, especially sugar, mo...
Sunday, March 25, 2018

Have a Coke

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I love iced tea (unsweetened!).  Always have.  Before TG, I was more likely to have iced tea with my meal than anything, but occasionally en...
Tuesday, February 20, 2018

One Year!

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It's been one year since I wrote these words: I'm sitting here on the eve of my surgery. I'm freaking out. I can feel my heart ...
Saturday, January 13, 2018

Almost 1 year follow-up

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When I saw Dr. Mansfield in June, he wanted to see me again in 6 months, which would have been December, but December is too busy so I sched...
Wednesday, January 10, 2018

New Clothes for Christmas

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Men's, size Small I've lost enough weight that I definitely need more new clothes. I thought about asking for some for Christmas...
Saturday, December 2, 2017

Thanksgiving

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Being the first major traditional stuffing yourself holiday since my total gastrectomy, I was a little anxious about how Thanksgiving would ...
Sunday, November 19, 2017

Random Ramblings

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I'm way behind.  It has been 3 months since I've posted.  I've intended on posting several times over the last 3 months.  I'...
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Linda Stokes
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