My total gastrectomy was 5 months ago today. It doesn't really seem like that long ago. The other day, I caught myself telling someone it was almost 4 months and then realized it was almost 5 months. Life has pretty much returned to "normal"...or at least a new normal. I'm still hoping that my energy level continues to increase, and I think it will, but I could live with where I am now if I had to.
I wrote about our long weekend travels the first of July. Last weekend, we had another travel weekend. One of Keith's best friends got married in Sioux City, Iowa. Since we would be so close to South Dakota and Keith has never been, he wanted to go up there and take some pictures. When I looked at a map, I realized part of South Dakota we would be close to was Vermillion, where my best friend from college lives. So, we left KC a little after 4:00 on Thursday, drove to Vermillion, stopping for supper along the way. We got there between 9:30 and 10:00. Friday morning, we picked up my friend around 9:30 and went to Devil's Gulch, Palisades State Park and the falls at Sioux Falls. We were then to Sioux City for a pre-wedding dinner Friday night. After dinner, we played games and lost track of time, so didn't get back to the motel until midnight. Saturday morning, I slept in until about 9:30. We then headed back to Vermillion and then to Yankton to see the bridge and eat lunch. We didn't have a lot of time since we got a late start and wanted to be back to Sioux City around 2:30 to get ready for the 4:30 wedding. It was a small wedding, just close family and friends. After the wedding, we had dinner at a restaurant and then back to the house for more games (requested by the bride's teen daughter). We had another late night, slept in Sunday morning and hit the road for home. At St. Joseph, Missouri, we jogged over to Kansas, hitting a couple of things in Atchison and Leavenworth for kansastravel.org.
It was a full weekend. I was tired, but did OK for the most part. I did have a minor episode at Palisades State Park. We had walked down a short trail to see one of the rock formations. I got hot and tired and not feeling well, so decided to head back to the car. Before I could get very far, things quickly got worse. Back in high school and college, I had some problems with black out spells. Doctors were never able to determine what caused them. They've continued occasionally in adult life, but not very often (like every few years). Well, as I was trying to head to the car, I felt like I was going to black out, I needed a bathroom and I thought I was going to throw up. I had to sit down on a rock, bench, whatever, 2 or 3 times on the way to the parking lot. I tried to throw up, but nothing would come up. When I wasn't going to black out so I could walk, I walked quickly so I could get to the primitive toilets which were fortunately in the parking lot. I got through it and made it to the toilets just in time, but there was a moment I was starting to panic and wondering how I was going to get off the trail and back to the car. I was cautious the rest of the day and didn't do much walking.
After two short weeks at work, I had a full week this week. Monday and Tuesday I had evening meetings at 6:00 and 6:15, so worked straight through. I was at the church for 10 hours Monday and 9 1/2 hours Tuesday. I was obviously tired at the end of the day both days, but I wasn't drop-dead tired. That actually told me that I'm doing a lot better. Just a few weeks ago, I would not have been functioning at the end of a 10 hour day. I ended up putting in basically 39 hours this week, the most, by far, I have done since surgery.
From Breast Cancer to CDH1 to a Prophylactic Total Gastrectomy to Living Life Without a Stomach
Friday, July 21, 2017
Sunday, July 9, 2017
Long 4th of July weekend
My husband, Keith, has a website,
kansastravel.org, where he goes around the state of Kansas and takes
pictures and posts about everything from museums to waterfalls to
zoos to locally owned restaurants and all sorts of stuff. Basically,
his belief is every community, regardless how small, has something.
In the 9 years we have been together, we have traveled Kansas
together. Often times he has taken me to things I've never seen or
heard of as a lifelong Kansan. Sometimes I can fill him in on
details he doesn't know because I grew up here.
With the focus on my surgery, we
obviously haven't done much exploring Kansas this year. Living on
the east side of the state, it is particularly hard to get to the
western edge very often. You pretty much need a 3 day weekend or
more. Since the 4th was on a Tuesday, he suggested we
take Monday off and make it a 4 day weekend and head west. I was
reluctant at first because I still wasn't sure about my energy level,
but ended up deciding to go ahead as long as he was willing to accept
my criteria: don't push me too hard and don't force me to get up too
early in the morning. Keith usually does all the driving so I
figured I should be able to easily relax in the car. Then of course
I knew meals would be a little bit of challenge because the
restaurants would be chosen based on what he wanted to try for his
website, not what I thought would have the best options for me, but
I'm getting pretty good about finding something that works wherever
we are.
When Keith figured out where he wanted
to have supper Friday night and how far west we wanted to get based
on July 4 weekend events, it was decided we should leave work early
to hit the road around 4pm on Friday. It was closer to 4:30 before
we got gone. I had packed snacks (string cheese, pretzels, nuts and
protein bars). I hadn't had my afternoon snack yet, so ate string
cheese and pretzels as we left Kansas City. We also stopped to pick
up a $1 iced tea at McDonalds. Keith likes me to read to him in the
car while we're traveling, but I don't like to read novels, so after
finishing my snack, I read to him from “100 Things Kansas Fans
Should Know & Do Before They Die” by Ken Davis.
We reached our dinner destination,
Three One One in Abilene, just before 6:30pm. Since surgery, I have
established a general rule for myself that I try to keep my
restaurant meals under $10 unless it is something that I plan on
taking home and getting several other meals out of. I knew that for
this trip, I would be forced to make exceptions to that rule. One of
the things this restaurant is known for is grilled Mahi-Mahi, so I
ordered the Mahi-Mahi sandwich. It came with two large filets on a
bun and a side of house-made chips. I ate most of one filet, leaving
behind the bun. I was also tempted by the slice of very ripe, very
good tomato. I've only had a little raw tomato, but the skin peeled
off easily and I ate most of it. It was very delicious. I only had a
few of the chips. My husband had a hamburger and ate my second
Mahi-Mahi filet. Since we're experiencing this for the website, and
the restaurant is known for their key lime pie, we had to try a
piece. I only ate one or two bites, but it was pretty good.
After dinner, we drove on to WaKeeney
where we spent the night. There was a cattle drive as part of July 4
festivities near Goodland at 10am Mountain Time Saturday morning.
Keith really wanted to do it, thus the reason for pushing so far
Friday night. Before leaving home, I had agreed to being on the road
by 9am Central Time Saturday morning. That had me getting up a
little earlier than I would prefer, but I was willing to do it for
one day of our weekend. The motel had a very basic breakfast, but
nothing really appealed to me and the only thing with protein was
hard boiled eggs which I don't like. I had brought with me Special K
Protein cereal for just an occasion and had my cereal with their milk
for breakfast.
On the way to Goodland, I read the
first chapter of my mother's 1936 Kansas History textbook, Four
Centuries in Kansas. We reached Goodland for the cattle drive in
plenty of time. We sat in a field in lawn chairs while a woman in
period dress explained about life in the 1800s and what we were
getting ready to see. Some of the information she shared seemed to
be taken from the book I had been reading such as stories about the
millions of buffalo that once roamed the land. About 6 cowboys
brought the cattle in to the water hole near where we were sitting.
The lead cowboy was in character as he talked about bringing the
cattle through on their way to Wyoming and the hardships along the
way. After the reenactment, we watched a real cattle drive down the
street as they moved the cattle from this field to another one. There
was a herd of buffalo in the field next to where they were moving the
cattle which we also got to photograph.
After the cattle drive, we went on into
Goodland for lunch at the Butterfly Cafe at the local Goodland
airport. I got a grilled chicken sandwich with a salad and mashed
potatoes. This was my first try at a salad, but I have had a little
bit of tomato and lettuce on a sandwich, so decided I was good to
give it a try. I only had a few bites, but did OK. Again, I just
ate the grilled chicken, not the bread. I can eat bread OK, but just
don't want to fill up on it. This was another place known for their
pie, so we got a slice of apple pie to share. I had 2 or 3 bites.
After lunch, we went to a local bar to
find the owner to talk to him about a gas station he had restored that we had stumbled across on a previous trip. When we asked about
him at the bar we were told he was grilling in the kitchen, but
“stick your head in” and see if he can talk to you. So Keith
stood in the kitchen doorway interviewing Rod as he kept cooking. I
waited at the bar and ended up having a very nice chat with a family
sitting nearby. One of the women at the table was best friends with
Rod's wife and she ended up texting her to come down so we could see
the inside of a house Rod had restored. Less than 5 minutes later,
the wife was at the bar, relieving her husband in the kitchen, so he
could go show us the house. It was an amazing house that had
originally been a doctor's home and office. He had done lots of work
inside and outside, as well as to the horse barn behind the house.
In the process, he had discovered all sorts of the doctor's equipment
and other medical supplies, which he has nicely on display within the
house. Fully furnished, if he didn't find it in the house, he filled
in with other antiques he already owned. It was nicer than many
museums, but was a passion of love and is not open to the public
except by invitation.
From here we drove to Lake Scott StatePark, photographing anything of interest along the way, including
small towns, murals, abandoned buildings, landscapes, animals,
whatever. We drove around the lake taking more photographs and then
on down to Scott City. We had a few minutes before our dinner
reservation so were driving around when we noticed an old car at the
gas pumps of another restored gas station we had photographed on a
previous trip. There were two men talking and we thought there was a
good chance one was the owner. Sure enough, after one left, the
other man went inside, so we stopped and Keith was able to get more
information about the station.
Majestic Theater Restaurant, Scott City, Kansas |
We had supper at the Majestic Theater
Restaurant, a very elegant restaurant in an old theater. The menu
was somewhat limited, but I ordered grilled shrimp (was way over my
$10 limit with this meal). It came with a salad and bread. I was
enjoying my salad with delicious blue cheese dressing, along with the
bread, but decided I needed to stop or I wouldn't be able to have any
of the main meal. I don't know if I ate too much or if there was too
long of a break before the entree came or what, but by the time my
meal came, I wasn't feeling great. I took one bite of the grilled
shrimp and was chewing and chewing, but couldn't make myself swallow.
I was finally able to swallow that one bite, but knew that was a
sign I shouldn't eat anymore. I felt bad not eating any of this nice
meal at a nice restaurant. At the end of the meal, I just politely
explained to the server that the food was great, but I wasn't feeling
well, and asked for a box. I didn't go into any detail about why I
couldn't eat more.
After supper, we drove on down to
Garden City where we spent the night. Keith let me sleep in Sunday
morning. I got up just in time to do the breakfast buffet which was
included in the room, but was a full buffet instead of the
continental breakfast at many motels. I had a few breakfast
potatoes, scrambled eggs, 1 slice of bacon and a few chunks of
watermelon. Before we left town, we took various photos in Garden
City, including at the cemetery and of the Courthouse. Then it was
on to Ingalls Cafe in Ingalls, Kansas (a town of 300) for lunch. I
ordered the fried catfish dinner. It again came with salad. I only
had a couple of bites this time, but made Keith eat most of it.
Since he was only getting a sandwich, his didn't come with salad. I
got two huge catfish filets, mashed potatoes and gravy, corn and a
roll. I don't think I ate any of the corn and only a bite of the
roll. I ate most of one filet, eating out the center and leaving the
more crispy edge behind, as well as a little potatoes.
Liberty Garden 9-11 Memorial, Dodge City, Kansas |
From Ingalls we headed on through
Cimarron and ultimately to Dodge City continuing to photograph
whatever struck our fancy along the way, including another
courthouse, churches, an old hotel and more. In Dodge City, we
toured the Mueller-Schmidt House, a stone home built in 1881, and the
Liberty Garden, a memorial to 9-11, among other sites. We went from
Dodge City up through Ness City and other small towns, eventually
returning to WaKenney Along the way, we photographed more
courthouses, churches, murals and other buildings.
Supper was at the Western Kansas Saloon
and Grill, housed in a former hardware store, in WaKenney. I had the
pork loin special with new potatoes and green beans. There were 3
pork loins, I ate most of one. Keith sampled part of one and had the
rest, along with my grilled shrimp from the previous night, for
breakfast the next morning. I only ate a little bit of the new
potatoes and green beans. For one, the potatoes were very large for
new potatoes and not quite as done as I would have preferred.
We stayed at the same motel that we had
stayed at Friday night. The continental breakfast was only open till
9am, but Keith brought a bowl of milk to the room so I could add my
protein cereal and didn't have to get up that early. Monday is the
one day the local historical society museum is not open, but Keith
had arranged for someone to meet us there at 10am. He gave me the
option of sleeping even later, but I did get up to go. I didn't
allow quite enough time to get ready, and we were coming back to the
room to check out after our appointment, so I waited to eat breakfast
after our visit to the museum. When I took the milk out of the
refrigerator, I found the top had frozen over (as had the water
bottles in the refrigerator...I think the temperature was turned down
a little too low). I tried stirring the milk, but couldn't get rid
of the ice crystals, so gave up in frustration. Thought about going
across the street to the convenience store to buy milk, but it was
nearing the 11am checkout and I didn't want to try to eat a bowl of
cereal in the car. I started eating the dry cereal out of the box
and discovered it actually didn't taste that bad, so ate that for
breakfast in the car.
We headed toward Hays for lunch at Al'sChickenette, stopping along the way in Ellis for photos at Memorial
Park, Mount Hope Cemetery, and an old truss bridge. For lunch, Keith
ordered a gizzard appetizer and we shared a 2 piece chicken dinner
that came with two sides, so we got one for me and one for Keith. It
was another place known for pies, so I had a couple of bites of peach
pie.
After lunch, we photographed a church
in Catharine and the remains of a church near Emmeram. We tried to
photograph two multi-arch stone bridges, but couldn't find one, even
though we followed exact directions, and gave up on the other when we
found the road being grated and couldn't figure out how we would get
around the grater.
We made it to Abilene about 5:00 and
checked into our Bed & Breakfast. I found it difficult to answer
the question about allergies or food restrictions. I went ahead and
told my story, received the usual shocked response, and we agreed on
smaller portions, protein and not much sweets and agreement that she
wouldn't be offended if I didn't eat something or very much. I had
prepared myself to be up front about my surgery as breakfast at a B &
B is totally different than at a standard motel. I hadn't thought
about the fact that also meant getting up earlier as we were given
the choice between eating at 8:30 or 9:00. I quickly chose 9 and
silently wished it were 9:30 or 10.
We had been in the room for less than
15 minutes when my cell phone rang. It was my oldest daughter, Jesi,
“I'm about to ruin your vacation.” Turns out she was in
the ER with appendicitis. She had went to her primary care doctor
who had run a test, diagnosed appendicitis and sent her to the
hospital emergency room. Since she hadn't seen the ER doctor and we
were over 2 hours away, we decided to wait till we had more
information before deciding to head home. We went to supper in
Detroit, Kansas. I had a grilled cheese and bacon sandwich with
french fries. I didn't care for the fries, but really enjoyed the
sandwich and ate most of it. After supper, we went on to Chapman to
do some more photography of a cemetery and church memorial.
St. Patrick's Mission Church Memorial, Chapman, Kansas |
By this time, Jesi still didn't know
whether they were going to do surgery Monday night or Tuesday morning
(on the 4th), but I decided I wanted to go ahead and head home.
Basically if they did surgery Monday night, we would be there when
she got out of surgery. If they did it Tuesday morning, we would be
there before surgery. If we waited to head home Tuesday morning, we
wouldn't be there either way. So we headed back to the B & B,
picked up our stuff, and headed home. We drove straight to the
hospital, getting there just before 11:00. We visited for awhile and
got home about midnight. The next morning, we headed to the hospital
about 9:00, having been told surgery would be between 10:00 and
10:30, it ended up not being until after 11:30, but all went well.
Not the ending to the trip we were expecting, but that's how life as
a mother goes. Because we started at the far western part of the
state and were working our way back east, the parts that we intended
to do on Tuesday that we didn't get to do, can easily be done in a
normal weekend trip, and we didn't really miss out on that much.