Friday, February 3, 2017


I had an Endoscopy done by Dr. Patrick Lynch at MD Anderson on April 1, 2016.  Like Dr. Mansfield, he has lots of experience dealing with patients with the CDH1 mutation.  As I said before, if you are opting not to have the surgery or delaying the surgery, they recommend annual endoscopies with at least 30 random biopsies.  Whereas my GI doctor in Kansas City had taken 3 biopsies when I had the endoscopy done last June, Dr. Lynch took 50.  Even with 50 biopsies it is unlikely they will find anything as there could be cancer right next to where they biopsy, but it wouldn't show up.  But it was still satisfying knowing he had at least followed, or actually exceeded, protocol.

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